Tomorrow morning I fly out for another Monday PET-CT scan at University of Colorado (CU) in Denver. Tuesday I start cycle 35 of Xalkori on my clinical trial (cycle = 4 weeks). If my Tuesday clinic visit reports a clean scan, I’ll be almost 30 months NED on this targeted therapy. Because my injured left […]

On May 28, I blithely strolled the streets of Chicago and stepped in a missing sidewalk square.  My right toe caught the edge as I stepped out, and momentum carried me forward.  I lunged several steps, trying to regain my balance, but my shoulder bag (with my iPad and other weighty items) threw me off balance.  All 230-ish […]

To celebrate National Cancer Survivors Day, I’m sharing a recent picture of me with Linnea Olson, a sister metastatic lung cancer patient and one of the bloggers (Outliving Lung Cancer) who inspired me to become a lung cancer blogger and advocate.  She and I are both alive thanks to research and clinical trials.  As Linnea phrased […]

This is a reblog of a 5/18/2015 post on the #LCSM Chat site (reposted with permission). Lung cancer patient advocates are beginning to make their voices heard and gain acceptance in the medical world.  For the first time ever, patient advocates will be speaking from the stage at the World Conference on Lung Cancer (WCLC), the […]

The short film “Moving On” touched me both as a daughter who made care choices for dying parents, and as a metastatic lung cancer patient who is likely facing death sooner rather than later. It’s especially poignant since I spent yesterday in a workshop about palliative care and end of life. I needed several tissues after the subtle […]

Today is my fourth cancerversary.  Four years ago–May 10, 2011–I first heard a confirmed diagnosis of lung cancer.  On cancerversaries I review events of the past year and assess how I’ve spent my time.  I’m not looking to pat myself on the back for my accomplishments, or check locations off a travel list.  I’m looking […]

Woohoo!  My clinical trial drug may get FDA approval soon!   It’s about time. The clinical trial in which I participate has been running for over three years.  I take Xalkori (crizotinib) for my ROS1-positive non-small cell lung cancer.  Early phase clinical trial results  announced last year show around 72% of patients experienced measurable shrinkage of their tumors, […]


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