Despite the phantom scan snafu (flew to Denver without my scans being scheduled) and a crazy busy schedule, this clinical trial trip to Denver has been great. I avoided the worst of the snowstorm, learned my new North Face Thermoball jacket keeps me toasty in subzero windchill, met my new great nephew Tate AND lung […]

My bimonthly clinical trial appointment is this coming week. I typically fly from Seattle to Denver on Sunday, have my labs and scan on Monday, see my doctor Tuesday, and fly home Wednesday. Scanxiety has a new twist for me this time around. I discovered late Friday that Monday’s scan doesn’t exist in the University […]

On February 19, 2015, I was an invited patient advocate speaker at the 11th Annual Moores Cancer Center Industry/Academia Translational Oncology Symposium. My topic, “EPatients on the Front Lines:  Precision Medicine, the FDA, and Me,” explained how cancer research could move faster and be more successful if researchers, pharmaceutical companies, and the biotech industry would […]

This article first appeared on my February 1, 2015, blog for Cure Today Magazine.  Reprinted here with permission. —————————————- As posted in a recent CURE article, the US Food and Drug Administration (FDA) has proposed draft regulations titled “Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs).”  The FDA should withdraw this proposed framework because […]

The US Food and Drug Administration (FDA) announced its intention to regulate laboratory developed tests.  Under the FDA’s proposed Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs) — which treats LDTs as medical devices and healthcare providers as manufacturers — laboratories would have to submit applications for expensive premarket review for thousands of LDTs […]

Friend and science fiction author David D. Levine blogged on 29-Dec-2014 about his wife Kate Yule’s “Journey” into Cancerland. Kate, who is adept at learning new languages, had recently undergone a craniotomy for a malignant brain tumor and is now dealing with aphasia. David gave me permission to share what he wrote.  [This appeared January 5, 2015, on […]

Richard Smith wrote a New Years Eve opinion on The BMJ blog titled Dying of Cancer Is the Best Death. Early in the piece, he asks, “How do you want to die? You must think about it.” As a metastatic lung cancer patient, I have spent significant time thinking about my death, which will likely […]

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