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Honoring #LungCancer Patient Advocates on #WLCD22

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Lung cancer patient advocates share purpose, laughter, and tears. On #World Lung Cancer Day, I celebrate efforts to improve outcomes & quality of life for people living with lung cancer. Most of us have/had lung cancer. Many have died. Still, we persist because … we see how we make a difference. #LCSM #WLCD

Below I’ve listed several large, established nonprofit organizations engaged in some aspect of lung cancer patient advocacy. All provide medically validated information about lung cancer, offer patient supports, and/or fund lung cancer research. Many individual patients (like me) and smaller nonprofits are also engaged in aspects of lung cancer patient advocacy.

American Lung Association

Global Lung Cancer Coalition (GLCC) (includes member organizations around the globe)

GO2 Foundation for Lung Cancer

Lung Cancer Canada

Lung Cancer Europe (includes member organizations in Europe)

Lung Cancer Foundation of America

Lung Cancer Research Foundation

LUNGevity Foundation


Celebrating World Lung Cancer Day 2015

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World Lung Cancer Day 2015

August 1, 2015 was the fourth-ever World Lung Cancer Day.  Conceived by  lung cancer survivor Betsy Thompson and supported through a grass-roots movement of patients and family members, this day honors those who have or had lung cancer.  I’m pleased to say it’s really taking off!  Over 40 proclamations recognizing August 1 as World Lung Cancer Day have been issued by US states and cities, and over 20 countries acknowledge the day.

This year the Forum of International Respiratory Societies highlighted the event with a new initiative called Honor, Unite, Inspire along with a fact sheet and infographic, and the news media reported on it.  Dozens of lung cancer survivors and family members posted pictures and remembrances on the WLCD Facebook page.  Survivors, advocates and healthcare providers posted images of patients as well as screening and treatment news, info on risk factors and research updates on Twitter using the #WorldLungCancerDay hashtag.  Even the President’s Cancer Panel (@PresCancerPanel) tweeted to acknowledge the day.

As a lung cancer patient, seeing so many fellow patients celebrated without stigma felt WONDERFUL!  Thanks to all who participated for your love and support.