Hi! I’m Janet. I’m a writer, science geek, and lung cancer patient activist. Here’s why I advocate for lung cancer patients.(Thanks to Ignyta for filming and producing this video for me.)
If you want to learn more about me, you can visit these pages.
Thanks to the MIT Alumni Association for creating this video.
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Hi, Janet. I came to your blog via Sandra Nachlinger. I have just been diagnosed with lung cancer and am blogging my journey. Sandra read it and referred me to your blog. I am looking forward to reading your journey.
Good luck with your lung cancer journey, Ruth. I hope you get good treatment news once all the workups are complete. Please feel free to email me if you want to chat. Sandra can give you my email address (I don’t want to publish it on a blog).
Thank you, Janet. Right now I’m trying to process everything without having a total meltdown!
good luck, homie!
Hey Gordon! Thanks for reading. I didn’t realize we were in Cambridge, MA, during the same era. Please help me figure out how we’re related — my chemo brain isn’t making the connection.
Good luck on a tough journey. I am also a stage iv oregonian.
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Nice to meet you! I hope you don’t mind me following!
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My name is Dr. Dana Hansen and I am faculty at Kent State University, College of Nursing. You may view my faculty website page at http://www.kent.edu/nursing/facstaff/bio/~dhansen1/ .
We are contacting you because you are listed as the contact person of the blog. My research team and I are interested in learning about the family caregiver’s experience with reading their loved one’s illness blog.
Therefore, we are conducting a research study and are inviting you to participate. Below are details of the study. You can also find out more by going to our study website: (will be added once website developed).
If you are not the family caregiver of the person with a serious illness, please forward this information to someone who is.
Family caregivers are eligible to participate in the study if:
• Both you and your loved one are 18 years or older
• The blogger/ill person must have a diagnosis of cancer, congestive heart failure (CHF), chronic obstructive lung disease (COPD), or human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome (AIDS)
• The blogs must be written in English with a minimum of 1 posting per month
• The family caregiver must participate in the blog by responding to the blog or reading the blog
Procedure and Time Commitment:
The family caregiver should go to our website where they can click on an icon labeled “participate in study”. The family caregiver will be asked to read and agree to a consent form. If they choose not to participate after reading the consent form, they click on the icon labeled “I disagree”.
If the family caregiver agrees to participate, they will complete a form asking their name and how to contact them. Then a member of our research team will contact them to schedule a time to conduct a 1-2 hour interview where we will ask questions about their experience as a caregiver interacting with their loved one on an illness blog. A nominal onetime payment of $50.00 will be sent to the participant once the interview is complete.
Participation is voluntary, refusal to take part in the study involves no penalty or loss of benefits to which participants are otherwise entitled, and participants may withdraw from the study at any time without penalty or loss of benefits to which they are otherwise entitled.
Thank you for your time and consideration,
Dr. Dana Hansen
Dana Hansen RN, PhD
Kent State University, College of Nursing
113 Henderson Hall, P. O. Box 5190, Kent, OH 44242
I am just beginning this horrible journey
Tammie, how are you doing now, two months later? Best hopes for successful treatment!
Hi Janet! I just discovered your blog and story and it gives me hope. Would love to connect by email. I have stage 4 lung cancer diagnosed 20+ months ago. I only learned about genetic testing by getting a third opinion on treatment options. First two docs didn’t even mention it. I have been in an out of state trial since Jan for a met mutation. So far so good but not NED or expecting that. Send me an email when you have time! Good luck and hugs, Diann
Sorry you learned about genomic testing late in the game, but glad you had an actionable mutation! You can email me at jfreeman.wa at gmail dot com.
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I was diagnosed with stage 4 adenocarcinoma –egfr exon20– in October of 2017. Easily the biggest shock of my life! Dr Heather Wakelee at Stanford, has largely guided my therapy—carbo/alimta for 6 rounds w/40% reduction. I’ve been off therapy since May 1. June scans showed the cancer growing again and on Friday I have more scans so will find out what’s happening in there. I will likely need to do radiation or–more likely—the pozintinib trial through UC Davis/. I see so many posters getting many other opinions. Am I missing the boat by not inquiring at CO, and other cancer centers? Because my mutation, exon 20, is so rare, maybe I have already found the best course moving forward but I’m wondering if you think there is a stone unturned for me to investigate.
Sorry to hear your cancer is growing again. Please reach out to the Exon 20 Group at http://www.exon20group.org/. They have helped many patients dealing with your type of cancer. They also have a Facebook Group where you can connect with other patients who have your disease. Best hopes for effective treatment!
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